Those with ALS redefine what it means to be alive

With the tap of a toe or the blink of an eye, those with ALS are redefining what it means to be alive.

I have to admit it took some time to come up with that line and believe it -- to have that kind of positive outlook on this nasty deadly disease and the future.

Just a year and a half ago, my mother, Myrna Malveaux, 69, was healthy. Our family's matriarch, she was the one who was the life of the party, the trusted confidante but town crier of all family secrets, the glue that held my father, me, and my three siblings together.

http://www.cnn.com/2013/07/01/health/iyw-als/index.html?hpt=hp_c4